HER2 Support Group Forums - View Single Post - PET results suspicious for small metastic lesions

candlegranny · 08-11-2011, 06:09 PM

I dont know what I am feeling right now. I talked to my oncologists assistant on Monday or Tuesday?? she said to wait and see the doctor on 26 Aug. she said the spot they found was too small to even be biopsied so we just have to watch it and wait. she said if I felt better I can leave my port in for another 3 months. I finished herceptin in May. Today I went to my radiologist for a follow up and they had sent a copy of my PET to them. MY radiologist was on vacation so I saw his substitute for this week. When I saw it I saw an addendum on it. OMG no one mentioned that too me. I dont know what to do but retype it for you and ask your opnions from your own experiences.
first part - Interval development of a 1.2 cm vague nodular density within the left apex laterally. this demonstrates mildly intense increased activity on the PET scan and may represent a small area of focal pneumonitis versus a small primary or metastatic malignancy. Clincal correlatoin and PET/CT follow up is recommended. the remainder of the PET scan was within normal limits.

THEN THE ADDENDUM: there are 2 other very small approximately 3 mm nodular lesions within the left upper lobe anteriorly. These developed since the previous study and are suspicious for small metastatic lesions. Dedicated CT imaging of the chest is recommended for further evaluation.

now there you have it. I am believing this can jsut be scaring from radiation, since it is the left side and top where I had radiation, My husband says we will just fight it again. I wonder how it can come back so fast? Is that normal to stop herceptin and in months have metastatic lesions? I guess I have to wait on more tests. I have blood work on the 19 and see my oncologist on the 26. I am going to see my radiologists next week as soon as he gets the disc of the PET so he can look and see if this is an area I got radiation - making it possible for scar tissue. I dont want to think i am in denial but being positive in thinking this is not what it can be at the worse but scare tissue or something besides cancer. thanks for your time to read this and reply, Bonita

08-11-2011, 06:09 PM	#1
candlegranny Senior Member Join Date: Feb 2010 Posts: 151	PET results suspicious for small metastic lesions I dont know what I am feeling right now. I talked to my oncologists assistant on Monday or Tuesday?? she said to wait and see the doctor on 26 Aug. she said the spot they found was too small to even be biopsied so we just have to watch it and wait. she said if I felt better I can leave my port in for another 3 months. I finished herceptin in May. Today I went to my radiologist for a follow up and they had sent a copy of my PET to them. MY radiologist was on vacation so I saw his substitute for this week. When I saw it I saw an addendum on it. OMG no one mentioned that too me. I dont know what to do but retype it for you and ask your opnions from your own experiences. first part - Interval development of a 1.2 cm vague nodular density within the left apex laterally. this demonstrates mildly intense increased activity on the PET scan and may represent a small area of focal pneumonitis versus a small primary or metastatic malignancy. Clincal correlatoin and PET/CT follow up is recommended. the remainder of the PET scan was within normal limits. THEN THE ADDENDUM: there are 2 other very small approximately 3 mm nodular lesions within the left upper lobe anteriorly. These developed since the previous study and are suspicious for small metastatic lesions. Dedicated CT imaging of the chest is recommended for further evaluation. now there you have it. I am believing this can jsut be scaring from radiation, since it is the left side and top where I had radiation, My husband says we will just fight it again. I wonder how it can come back so fast? Is that normal to stop herceptin and in months have metastatic lesions? I guess I have to wait on more tests. I have blood work on the 19 and see my oncologist on the 26. I am going to see my radiologists next week as soon as he gets the disc of the PET so he can look and see if this is an area I got radiation - making it possible for scar tissue. I dont want to think i am in denial but being positive in thinking this is not what it can be at the worse but scare tissue or something besides cancer. thanks for your time to read this and reply, Bonita __________________ Mammogram Sep 21, 2009 everything good and clear DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56 modified radical masectomy on LEFT side 29 Jan 2010 2.7 cm 18/31 nodes mets to just above collar bone ( 2 nodes showed in PET) ER- PR - / Her2 +++ (IHC) Stage 111 C ki-67 60% nottingham score 7 A/C chemo mar 22,2010 DD herceptin & taxotere DD june 1,2010 finished taxotere july 12, 2010 finished herceptin 16 May 2011 PET Scan 9 Aug 10, cancer in neck is gone! NED 33 Rads completed 1 Oct 2010 PET/CT Scan 6 Jan 2011 NED PET/CT Scan 3 Aug 2011 MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11 26 Aug 2011 NED 20 Feb 2012 NED 5 Mar 2012 PORT OUT 12 July 2012 DIEP breast reconstruction 23 Aug 2012 NED 15 Nov 2012 new breast tweeked and natural breast uplifted and implant added 17 Feb 2013 NED 27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment. "Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.