HER2 Support Group Forums - View Single Post - double vision episode where brain seemed to freak

CourtneyL · 08-05-2011, 01:50 PM

My advice, as someone who had numerous brain mets with no symptoms, DO NOT WAIT - go and get a brain MRI immediately! If they are caught small they are much easier to treat. I too had double vision in December and turns out it was more brain mets. I've had 25 of the suckers so far and fortunately we've been able to manage them with a combination of Gamma Knife targeted radiation and now Intrathecal Herceptin.

I am sure your symptoms are from something else as brain mets are a rare complication. But you'll want the peace of mind ruling them out.

Good luck and keep us posted. You will be in my thoughts and prayers.

08-05-2011, 01:50 PM	#3
CourtneyL Senior Member Join Date: Aug 2008 Location: San Francisco Posts: 260	Re: double vision episode where brain seemed to freak My advice, as someone who had numerous brain mets with no symptoms, DO NOT WAIT - go and get a brain MRI immediately! If they are caught small they are much easier to treat. I too had double vision in December and turns out it was more brain mets. I've had 25 of the suckers so far and fortunately we've been able to manage them with a combination of Gamma Knife targeted radiation and now Intrathecal Herceptin. I am sure your symptoms are from something else as brain mets are a rare complication. But you'll want the peace of mind ruling them out. Good luck and keep us posted. You will be in my thoughts and prayers. __________________ 4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++ April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response! Sept 08-Dec 08: Herceptin +Zometa for maintenance. Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait. April 09: Gamma Knife 10 brain mets, add Xeloda. Sept 09: Gamma Knife to 1 brain met. Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa. May 10- Sept 10: HER2 Vaccine Trial Sept 10: Add Tykerb for more brain mets. Oct 10: Gamma Knife to 7 brain mets. Dec 10: Switch from Zometa to Denosumab. Jan 11: Gamma Knife to 3 brain mets. March 11: Gemzar/Herceptin for lung/bone progression. April 11: More brain mets - Intrathecal Herceptin June 11: Ixempra/Herceptin for lung, soft tissue progression. Aug 11: Gamma Knife Sep 11: Abraxane/Herceptin Future: NED Send me a PM if you'd like to follow my journey on Caringbridge.