Re: Ctc?
My onc was reluctant as she thought there would be insurance hassles.
I pushed for it and received a score of 1 at a time that I was dealing with a recurrance. Insurance paid the $600, so I felt very vindicated.
I pushed for it again and received another score of 1. This time insurance refused to pay and I had to argue with them for over a year. The insurance battle was very frustrating and emotionally exhausting.
I am reluctant to request another one unless I am willing to pay the $600 out of my pocket.
Since the standard tests do not work for me, I was grasping at some way to give me insights regarding disease progression.
If I recur, I might be willing to pay the $.
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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