HER2 Support Group Forums - View Single Post - Epstein-Barr virus in breast cancer tissue and resistance to paclitaxel

Jackie07 · 06-22-2011, 05:08 AM

Hi Camila,

Epstein-Barr virus was a popular diagnosis in the past when doctors couldn't figure out the cause of CFS. I remember reading Gilda Radner's book (or perhaps someone else's) about it. Her doctor kept telling her that she'd gotten Epstein-Barr virus and was working too much...

I'm sorry for your heart problem. Several members on this Board have improved their heart function by exercising and taking enarlapri (?) I hope you can improve soon. My Herceptin treatment stopped at 4 weeks when MUGA dropped more than 10%. Even while I was on chemo, one of my knees was swollen (because my heart wasn't strong enough to pump the fluid back) after a 40-minute walk. I don't remember what my oncologist said about it, but he gave me weekly Herceptin (instead of every three weeks according to the protocol back in 2007) after chemo.

It might be possible that your CFS has partially been caused by your heart problem. The symptoms probably worsened when you were having breast cancer/and treatment. Have you had genetic testing done? Do you have any family members/relatives who have been diagnosed with cancer?

Tai-chi might be something you can do even with a weakened heart. It builds resistance, flexibility, ...etc.

Hope everything improves soon.

06-22-2011, 05:08 AM	#7
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Epstein-Barr virus in breast cancer tissue and resistance to paclitaxel Hi Camila, Epstein-Barr virus was a popular diagnosis in the past when doctors couldn't figure out the cause of CFS. I remember reading Gilda Radner's book (or perhaps someone else's) about it. Her doctor kept telling her that she'd gotten Epstein-Barr virus and was working too much... I'm sorry for your heart problem. Several members on this Board have improved their heart function by exercising and taking enarlapri (?) I hope you can improve soon. My Herceptin treatment stopped at 4 weeks when MUGA dropped more than 10%. Even while I was on chemo, one of my knees was swollen (because my heart wasn't strong enough to pump the fluid back) after a 40-minute walk. I don't remember what my oncologist said about it, but he gave me weekly Herceptin (instead of every three weeks according to the protocol back in 2007) after chemo. It might be possible that your CFS has partially been caused by your heart problem. The symptoms probably worsened when you were having breast cancer/and treatment. Have you had genetic testing done? Do you have any family members/relatives who have been diagnosed with cancer? Tai-chi might be something you can do even with a weakened heart. It builds resistance, flexibility, ...etc. Hope everything improves soon. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 06-22-2011 at 05:25 AM..