HER2 Support Group Forums - View Single Post - Update - progression confirmed; the last shoe drops

Lori R · 06-15-2011, 05:33 AM

Chrisy,
Glad to hear from you....frustrated by the news that a liver met is indeed lurking.
Your medical team seems to be so open to different options, both old and new. (oh...and so are you) I agree with Brenda that you had good luck being on the leading edge with TDM-1, maybe they can select anotherrleading edge drug combo that will work wonders.

It must not seem this way, but it is good news that you have a met in a single location.

If you just need shrinkage for localized treatment, please speak to the Drs. about Abraxane. It was my 2nd treatment and was very tolerable. Hardly knew I was on chemo.

Localized treatment...wish I had more time to wager an opinion. Cryosurgery was freaky but very very doable. Think root canal. Up and about the next day. Lasted a year or so. Then there is the "gold standard", the resection. The good thing about an open resection is that the surgeon can actually see what is happening. They identified 2 nodes that the PET didn't reflect. Feels good to just get the cancer OUT...gone.

So many options my dear, I will be anxious to hear which horse you choose.

We will be here cheering you on!!

Lots of fighting power coming headed your way....Lori

06-15-2011, 05:33 AM	#29
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Update - progression confirmed; the last shoe drops Chrisy, Glad to hear from you....frustrated by the news that a liver met is indeed lurking. Your medical team seems to be so open to different options, both old and new. (oh...and so are you) I agree with Brenda that you had good luck being on the leading edge with TDM-1, maybe they can select anotherrleading edge drug combo that will work wonders. It must not seem this way, but it is good news that you have a met in a single location. If you just need shrinkage for localized treatment, please speak to the Drs. about Abraxane. It was my 2nd treatment and was very tolerable. Hardly knew I was on chemo. Localized treatment...wish I had more time to wager an opinion. Cryosurgery was freaky but very very doable. Think root canal. Up and about the next day. Lasted a year or so. Then there is the "gold standard", the resection. The good thing about an open resection is that the surgeon can actually see what is happening. They identified 2 nodes that the PET didn't reflect. Feels good to just get the cancer OUT...gone. So many options my dear, I will be anxious to hear which horse you choose. We will be here cheering you on!! Lots of fighting power coming headed your way....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)