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CoolBreeze · 06-13-2011, 04:48 PM

Hi Karen.

The biopsy was Thursday and it was very very painful. I was surprised, as was the medical team. They gave me Versed and Fentanyl but they might as well have given me water. I now know what it feels like to be stabbed.

I wrote up a (long) description in my blog for those interested.

This is the first painful medical test I've had in two years of treatment so I guess I can't complain too much.

I get the results on Wednesday - my appointment is at 9:45. There is little doubt what it will be. I am glad to hear the stories of people who have done well. I will ask about RFA if there are still only two mets. My onc said he wanted to do a PET too, but I don't want to wait for that test to begin treatment. I hope he sets something up Wednesday - even herceptin.

I've been having lower left side back pain since November (while still on herceptin) and it has increased to the point where it is beginning to interfere with my life. It is also all across my lower back, so I fear that is also part of the disease process. Needless to say, I want to get on some kind of treatment ASAP.

I'll let you all know. Thank you for your support.

06-13-2011, 04:48 PM	#29
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Possible Liver Mets? Hi Karen. The biopsy was Thursday and it was very very painful. I was surprised, as was the medical team. They gave me Versed and Fentanyl but they might as well have given me water. I now know what it feels like to be stabbed. I wrote up a (long) description in my blog for those interested. This is the first painful medical test I've had in two years of treatment so I guess I can't complain too much. I get the results on Wednesday - my appointment is at 9:45. There is little doubt what it will be. I am glad to hear the stories of people who have done well. I will ask about RFA if there are still only two mets. My onc said he wanted to do a PET too, but I don't want to wait for that test to begin treatment. I hope he sets something up Wednesday - even herceptin. I've been having lower left side back pain since November (while still on herceptin) and it has increased to the point where it is beginning to interfere with my life. It is also all across my lower back, so I fear that is also part of the disease process. Needless to say, I want to get on some kind of treatment ASAP. I'll let you all know. Thank you for your support. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.