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Jackie07 · 06-11-2011, 04:36 PM

Sorry for the interruption. Karla has been put on Tykerb according to her posting in March:

"Thank you all for your support, prayers and good thoughts.
I got out of the hospital yesterday, Yeah!!!!!!!!!, but my white counts were still high 18, I still have a bad cough, and I'm feeling very tired. When the doctor came to see me, I put up my best face, and pretended I was feeling great lol, but I though I was going to stay another day. He said to be safe, he should keep me one more day there, but since I was feeling and looking good, he was going to release me YES!!!!!! I couldn't believe!!!! I was so, so happy!!!!

Started my Tykerb yesterday, and slept and rested since I got home. Today I went for my Herceptin, and slept most of the day after I came back. I'm still taking insulin and 2 kinds of antibiotic, besides the other medications I already take. I still have a bad cough, feel short of breath, tired and had mild fever today. Tomorrow I will have a CT scan of the chest, and hopefully things will look better than on the scan they did in the hospital. I will see my pulmonologist this week and oncologist next week. I pray that the infection and this bad cough go away soon.

Did any of you have a partially colapsed lung? Is it painful? I wonder about my partial colapsed lung. I was in extremely pain when I went to the ER, but the pain is gone. Does that mean that my left lung is back to normal? I pray that this is true.
Thanks again for your support. You guys are amazing. God bless you all.

I will keep you updated.

Love to all,
KarlaV."

She did quit after a year according to her May 2nd posting:

"I just started Halaven/Herceptin for my lung mets because of progression, before I was on herceptin/Tykerb for a year. First week I had Herceptin/Halaven, second week just Halaven, this week is my week off. Side effects so far: I feel very tired,but I was already feeling very tired before halaven, no nausea (no nausea medication, when I feel mild nausea, I eat something, and I'm fine), it seems neuropathy is getting worse, thinning of the hair. One thing I noticed is that I'm coughing more since I started the new drug."

Seems these drugs often become effective again after stopping them for a while. But looks like Halaven is doing a good job. Hurrah!

06-11-2011, 04:36 PM	#8
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Update on Brain Mets Sorry for the interruption. Karla has been put on Tykerb according to her posting in March: "Thank you all for your support, prayers and good thoughts. I got out of the hospital yesterday, Yeah!!!!!!!!!, but my white counts were still high 18, I still have a bad cough, and I'm feeling very tired. When the doctor came to see me, I put up my best face, and pretended I was feeling great lol, but I though I was going to stay another day. He said to be safe, he should keep me one more day there, but since I was feeling and looking good, he was going to release me YES!!!!!! I couldn't believe!!!! I was so, so happy!!!! Started my Tykerb yesterday, and slept and rested since I got home. Today I went for my Herceptin, and slept most of the day after I came back. I'm still taking insulin and 2 kinds of antibiotic, besides the other medications I already take. I still have a bad cough, feel short of breath, tired and had mild fever today. Tomorrow I will have a CT scan of the chest, and hopefully things will look better than on the scan they did in the hospital. I will see my pulmonologist this week and oncologist next week. I pray that the infection and this bad cough go away soon. Did any of you have a partially colapsed lung? Is it painful? I wonder about my partial colapsed lung. I was in extremely pain when I went to the ER, but the pain is gone. Does that mean that my left lung is back to normal? I pray that this is true. Thanks again for your support. You guys are amazing. God bless you all. I will keep you updated. Love to all, KarlaV." She did quit after a year according to her May 2nd posting: "I just started Halaven/Herceptin for my lung mets because of progression, before I was on herceptin/Tykerb for a year. First week I had Herceptin/Halaven, second week just Halaven, this week is my week off. Side effects so far: I feel very tired,but I was already feeling very tired before halaven, no nausea (no nausea medication, when I feel mild nausea, I eat something, and I'm fine), it seems neuropathy is getting worse, thinning of the hair. One thing I noticed is that I'm coughing more since I started the new drug." Seems these drugs often become effective again after stopping them for a while. But looks like Halaven is doing a good job. Hurrah! __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 06-11-2011 at 04:47 PM..