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Old 06-08-2011, 01:35 PM   #9
yanyan
Senior Member
 
Join Date: Apr 2011
Posts: 403
Re: TCH- How did it work for you

Hi,Deb33. My onco read my path report and he is to continue the remaining 2 cycles. He didn't mention changing drugs, dosage or anything. My tumor and anxillary lymph node did shrink right away but they shrank to a certain point and stopped. My onco thought it was scar tissue, my surgeon said it was a very small tumor. My onco does surgery ususally after 2 or 3 cycles of chemo but in my case i was waiting for the BRCA gene test result and went with the 4th session. I saw him today and asked why i still had 10 positive nodes after 4 chemos. He said we didn't know what it was like before, maybe i had 30 positive nodes. I didn't want to ask him what my prognosis is based on the path report, honestly it didnt look very good to me. He did say that i needed the surgery. As for reconstruction, no one ever said i couldn't have immediate reconstruction. So i went with immediate reconstruction. I have IDC grade 3, stage 3. I didn't want to wait till the end of treatment for cosmetic reasons. But i am also taking the risk of possible complications, knowing radiation sometimes messes up things. I don't have much tissue on my tummy for 2 breasts but if you are going to need radiation, your immediate reconstruction choice is limited to tissue expander and exchange for implant after the treatment ends. I had lattismus flap with expander. Hope this helps..i am also ER/PR -, Her2 +
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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