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CoolBreeze · 05-28-2011, 06:18 PM

Thank you all for the wonderful support and advice.

I had to laugh when somebody said I got summers for my treatment - can you believe they make us high school secretaries work through the summer? There is nothing much to do but not only do they make us work, they make us work 4/10s!! At least if they put me on something that causes diarrhea, I won't have to fight a hallway full of kids to get to the bathroom.

And, if I'm tired and need to sleep later, nobody will be the wiser.

I had my pre-biopsy bloodwork done and now am waiting the call to set up the biopsy. Ideally, it would wait until after June 10th, which is graduation. But, we all know how much fun waiting is and I really want to get it done. I just imagine those suckers growing fast and I want them treated! And, like we all do, I want my treatment plan in place. Glad to hear the biopsy doesn't hurt.

I'm preternaturally calm. Not terrified, not worried for me at all.

I'm upset for my family though, especially my 14 year old son. If it turns out to be worse than I think, then how sad for him to lose his mother so early. I'll never forget one day when I was in the video game store buying a birthday present , a boy a little younger than my son was in there alone and started talking me. He immediately told me that his mother had just died of a heart attack; he asked me what I was buying and I said a present for my son. I was done with treatment then and had very short hair and I felt so sad for that boy - telling every stranger he saw his sad news - killing time at the video game store to take his mind off it - I and was so happy that my son wouldn't have to go through that pain.

I'm just so glad to know that there are treatments that can keep me around a while longer. I want very much to see my son graduate and off to college. He's an amazing student with a 4.7 GPA and he skipped a grade and will barely be 17 when he graduates. I want to see what college he goes to, take him there and settle him in. I have a 24 year old too, who still needs me -he calls me with his problems still. But, he's got his own life and he's raised.

But, oddly enough, even with those thoughts, this is a lot easier on me than my original diagnosis, even though it was stage II no nodes with a high survival probability. I guess I'm a cancer veteran now.

I still don't want to be bald. Like the Carcinista, I'm going out with my hair.

05-28-2011, 06:18 PM	#27
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Possible Liver Mets? Thank you all for the wonderful support and advice. I had to laugh when somebody said I got summers for my treatment - can you believe they make us high school secretaries work through the summer? There is nothing much to do but not only do they make us work, they make us work 4/10s!! At least if they put me on something that causes diarrhea, I won't have to fight a hallway full of kids to get to the bathroom. And, if I'm tired and need to sleep later, nobody will be the wiser. I had my pre-biopsy bloodwork done and now am waiting the call to set up the biopsy. Ideally, it would wait until after June 10th, which is graduation. But, we all know how much fun waiting is and I really want to get it done. I just imagine those suckers growing fast and I want them treated! And, like we all do, I want my treatment plan in place. Glad to hear the biopsy doesn't hurt. I'm preternaturally calm. Not terrified, not worried for me at all. I'm upset for my family though, especially my 14 year old son. If it turns out to be worse than I think, then how sad for him to lose his mother so early. I'll never forget one day when I was in the video game store buying a birthday present , a boy a little younger than my son was in there alone and started talking me. He immediately told me that his mother had just died of a heart attack; he asked me what I was buying and I said a present for my son. I was done with treatment then and had very short hair and I felt so sad for that boy - telling every stranger he saw his sad news - killing time at the video game store to take his mind off it - I and was so happy that my son wouldn't have to go through that pain. I'm just so glad to know that there are treatments that can keep me around a while longer. I want very much to see my son graduate and off to college. He's an amazing student with a 4.7 GPA and he skipped a grade and will barely be 17 when he graduates. I want to see what college he goes to, take him there and settle him in. I have a 24 year old too, who still needs me -he calls me with his problems still. But, he's got his own life and he's raised. But, oddly enough, even with those thoughts, this is a lot easier on me than my original diagnosis, even though it was stage II no nodes with a high survival probability. I guess I'm a cancer veteran now. I still don't want to be bald. Like the Carcinista, I'm going out with my hair. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.