HER2 Support Group Forums - View Single Post

NanaJoni · 05-13-2011, 04:59 PM

Cathy - you didn't say exactly where your pain was in that left arm but it could be many things, as you know. I wouldn't worry too much about calling the onc when you have aches and pains. My onc and his nurse practitioner both told me that they would be monitoring me carefully (every 4 months now) but that I NEED to be vigilant in recognizing when things are not "normal" (whatever that may be). Also, have you been checked for any problems with lymphadema. I go to an excellent physical therapist who is a breast cancer specialist and she makes careful measurements of my arms from shoulder to wrist - every 4" is marked then measured. I have no experience with Femara but Herceptin did cause me to feel achy and like I had the flu for the week to 10 days after treatment day. Your clean PET scan in April is really good news - so if you're not scheduled for a regular visit with your onc - call and ask. Stress can be very harmful - and you just don't need it.

05-13-2011, 04:59 PM	#3
NanaJoni Senior Member Join Date: May 2010 Location: Elizabethton, TN Posts: 418	Re: Questions about possible MET symptoms Cathy - you didn't say exactly where your pain was in that left arm but it could be many things, as you know. I wouldn't worry too much about calling the onc when you have aches and pains. My onc and his nurse practitioner both told me that they would be monitoring me carefully (every 4 months now) but that I NEED to be vigilant in recognizing when things are not "normal" (whatever that may be). Also, have you been checked for any problems with lymphadema. I go to an excellent physical therapist who is a breast cancer specialist and she makes careful measurements of my arms from shoulder to wrist - every 4" is marked then measured. I have no experience with Femara but Herceptin did cause me to feel achy and like I had the flu for the week to 10 days after treatment day. Your clean PET scan in April is really good news - so if you're not scheduled for a regular visit with your onc - call and ask. Stress can be very harmful - and you just don't need it. __________________ Joni -64 yrs old - 3/01/10: found lump in rt.breast 3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated 3/24/10:sent.node biopsy clear 3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side 4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides 5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo 07/2010: port not working-2nd port didnt'work;3rd port opposite side. 07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin 08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont. 12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks 4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc. 5/2011 - NED!!! port out. 8/2011 - clean PET & CT scans.Still NED 7/2012 - Still NED/very blessed. 2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.