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Re: more lung mets- what to do???
Dear ladies thank you so much for all your advice,
yes I had thought about navelbine (which I can get) or indeed to some form of laser treatment (but money is an issue here) as I would be surprised that laser treatment would be on the NHS. Not only we have to fight we this awful desease but for many of us we have to fight to get the treatment that would be most appropriate, it is very tiring..
I know I should not care but do you lose your hair on Navelbine? and what are the most common side effects, at least xeloda is/was quite easy.
And yes Chrisy you are right they are small and are to tell about new one being a new one since it is quite small
Thank for your good thought I am slowly regaining faith in a potential victory, you ladies are fighters
Much love XOXOx
PS and no I am not related to jeanybeans
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 05-13-2011 at 03:05 AM..
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