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Old 05-01-2011, 11:27 PM   #7
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Staying Sane During Wash-Out Periods

Dear Karen. I understand how you feel. You did well to post. I am sorry you feel pain because then your mind stays on the worst ideas. I hope your doctors will think of other pain killers. It's important.
I was going to write to you today to ask how you were and give you news. This morning I have an additional reason of thinking of you as a WTC survivor. Karen, you went through a lot and you will succeed again. We don't write much about our fears and distress. But I am not different. These weeks to wait are difficult. I am happy you are starting the trial process. This is wonderful news. Is it the Fairfax trial you investigated about?
On my side after my liver resection it was clear I needed chemo. But I had so much digestive problems I had to wait a month and my markers are slightly raising. I was so worried about these 5 weeks between the end of Tykerb/Herceptin and chemo. I started Herceptin/Navelbine on Friday. I had a lot of nausea and burns and thought I would never be able to continue but I feel better today.
Karen concentrate on the trial. You will be closely watched. You will have to prepare and that is really good news. I am sending hugs and hope that in your next post you will at least tell us you feel less pain. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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