Re: Anyone Doing Traveling For T-DM1 In Fairfax?
Hi... I have not posted anything in a very long time but still try to visit the site. I did start T-DM1 trial in Fairfax as my Dr is a part of that group. I had amazing results after the first treatment. I started this trial because the last 3 regiments did not work and the one I did before starting the trial did work some but you can only do 6 treatment.. A/C Hercp. When I got my first Pet back in Dec 2010 it was NED... I have not been NED in years. This go around I had over 40 nodules in both lungs and a Pec area mass that had been growing off and on since 2007 .. The pec area literally melted away almost entirely after one treatment and by the 2nd treatment it was entirely gone... So for those thinking about or trying to get on the trial I would recommend it. I still suffer with sides effects as I have been stage 4 since I was diagnosed in OCT 04; This site is a real inspiration to me and will continue to be. I have no pc at home so I can only go online at work ...
Take care,
Debbie S
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dx stage 4 ... 11/04
3.2 cm mass breast & liver mets..
her2 +++ ; er- ; pr -;
11/04 treated with hercp, taxol & carboplatin - every 3 wks
3/05 ned - stopped chemo; hercp only
5/05 reoccurence left breast
6/05 added navelbiene w/ hercp every other wk
7/05 mascetomy
12/05 ned ; same regiment- every 3 wks
3/06 & 7/06 ned
9/06 stopped navelbiene.. hercp only.. every 3 wks;
10/06 pet scan shows positive lymph node in pec
12/06 PET no change;
4/07 scan showed 4 abnormal nodes in right pec area ... these have increased in activity since last scan... will start back on weekly navelbeine & hercp
7/07 PET done ..this time it showed new nodules in both right & left lung area as well as increased activity in pec area..
8/07 started Taxol & Carboplatin with Hercp every 3 wks
10/07 PET done ...Great Report ... NED ....
11/07 continue with Hercp every 3 wks & do Taxol & Carboplatin every 6 wks
4/09 still on same regiment; 1 positive node in left lung and right pec area
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