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Old 04-21-2011, 09:54 PM   #40
CourtneyL
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Join Date: Aug 2008
Location: San Francisco
Posts: 260
Re: Started Intrathecal Herceptin Today

I have great news to share so I'll get right to the point. The results from the spinal tap were negative! They did not find any cancer cells in the cerebral spinal fluid. As you know, this is very good news for my prognosis and treatment. While it may still mean that there could be some small number of rogue cancer cells in there, they couldn't find any.

Since I still have the brain tumors, some of which appear outside the brain tissue, we will continue with the intrathecal Herceptin injections to see if that can keep the existing tumors under control. The plan is to do one injection a month. We'll scan again in a few weeks to see where we're at and we may add the chemo Temodar to the mix if the Herceptin is not enough. I'm not sure if Gamma Knife is on the table yet. I'm trying desperately to avoid WBR but that is an option should I need it.

In the meantime, Jay and I, and my entire family for that matter, are breathing a little easier knowing that the worst case scenario has not arrived.

Words can not express my gratitude to you all for your thoughts, prayers, messages, private messages, emails, notes on my caringbridge page, etc. Its been a rough week or so but the clouds are lifting and there is cause to celebrate. God is listening to our prayers. The universe is sending out those good vibes.

Wishing you all a Happy Easter, Passover, or whatever your springtime celebration may be. I know we will be giving extra thanks this Easter Sunday.

With love and healing light and prayers to you all!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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