HER2 Support Group Forums - View Single Post - update

Lori R · 04-14-2011, 05:49 AM

Pam,
Sometimes it is darkest just before dawn. It appears you are on the cusp of a major breakthrough, so keep the faith!!!

Look at all you have accomplished in an incredibly brief time, 2 surgeries ..check, WBR...check, Decadron (evil, evil stuff)....you are done with that..check, Pneumonia....check...done with that.

Although small, I hope you find encouragement with even the smallest improvement. You definately need to keep your weight up. When I was first diagnosed I lost a lot of weight (due to the mental shock) and a nutritionist recommend viewing food as "medicine", since there is no appetite to trigger you to eat, she forced me to set an alarm to remind me to eat every 2-3 hours. I would eat high caolorie but healthy combos of protein + carbo. Think an apple with peanut butter crackers, cheese or nuts + a veggie. It was amazing when the alarm went off...there were times where I would look at the food and wonder how in the world I was going to choke it down. But the small quantities helped.

Just think of every bite of healthy, body building food as one more bite against the cancer!!!

Pam...I just know that that worst is behind you and with continued TLC you will be up and around. Independent as always.

Lots of Love.....Lori

04-14-2011, 05:49 AM	#11
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: update - on wbr & how I'm feeling Pam, Sometimes it is darkest just before dawn. It appears you are on the cusp of a major breakthrough, so keep the faith!!! Look at all you have accomplished in an incredibly brief time, 2 surgeries ..check, WBR...check, Decadron (evil, evil stuff)....you are done with that..check, Pneumonia....check...done with that. Although small, I hope you find encouragement with even the smallest improvement. You definately need to keep your weight up. When I was first diagnosed I lost a lot of weight (due to the mental shock) and a nutritionist recommend viewing food as "medicine", since there is no appetite to trigger you to eat, she forced me to set an alarm to remind me to eat every 2-3 hours. I would eat high caolorie but healthy combos of protein + carbo. Think an apple with peanut butter crackers, cheese or nuts + a veggie. It was amazing when the alarm went off...there were times where I would look at the food and wonder how in the world I was going to choke it down. But the small quantities helped. Just think of every bite of healthy, body building food as one more bite against the cancer!!! Pam...I just know that that worst is behind you and with continued TLC you will be up and around. Independent as always. Lots of Love.....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)