HER2 Support Group Forums - View Single Post - Brain Met

krisvell · 04-11-2011, 03:53 PM

Hi,
In two weeks, I go for a brain MRI to see the results after two Gamma Knife treatments. They mentioned there's a 90-99% control rate for the first year and a 66% chance for shrinking. After one month, the volume shrunk by 30%. So that's good.
I am getting nervous waiting and wondering what to expect. My eyesight has gotten a little better. The numbness in left leg hasn't changed but they said it probably wouldn't; permanent nerve damage. I've been reading the signatures and I am hopeful.
Would you share what outcomes you've had with Gamma Knife and how it affected any symptoms from Brain Mets?
Hugs (and thank you),
Kris....

04-11-2011, 03:53 PM	#1
krisvell Senior Member Join Date: Sep 2009 Location: Kensington, CT Posts: 394	Brain Met - Getting Nervous Hi, In two weeks, I go for a brain MRI to see the results after two Gamma Knife treatments. They mentioned there's a 90-99% control rate for the first year and a 66% chance for shrinking. After one month, the volume shrunk by 30%. So that's good. I am getting nervous waiting and wondering what to expect. My eyesight has gotten a little better. The numbness in left leg hasn't changed but they said it probably wouldn't; permanent nerve damage. I've been reading the signatures and I am hopeful. Would you share what outcomes you've had with Gamma Knife and how it affected any symptoms from Brain Mets? Hugs (and thank you), Kris.... __________________ 06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++ Nottingham 6/9 - Grade 2 5.2cm, several nodes 06/23/09 - Neoadjuvant - TCH Herceptin til June 10/07/09 - Finished Chemo 10/27/09 - Mastectomy RB Path Report: RB No residual tumor pCR, 2 of 15 pos - .5mm largest micromets 12/18/09 - Radiation started (28) 02/05/10 - Finished Radiation 01/11/10 - Started Femara 06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best. 11/15/10 - Started Walter Reed BC Vaccine trial at 1/04/11 - Sibley Mem. Had to withdraw due to met 01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm 02/03/11 - Gamma Knife (2 fracts to minmize necrosis) 03/01/11 - Gamma Knife 6/11 - Necrosis 7/11 - Necrosis stopped & Tumor progression 8/11 = Now think it's really necrosis 9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking. 12/11 - Necrosis gone AVASTIN worked. 12/11 - Bone &CT found Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!