HER2 Support Group Forums - View Single Post - Question about Continuing Arimidex past 5 years

sassy · 03-30-2011, 07:24 PM

Hey all,

As of my last appointment, my onc plans to leave me on indefinately. He told me from day one he expected more than five years. I have been on for 5 1/2 years now.

I will see him on the 13th and ask what he is seeing in the research and what his opinion is. I will e-mail him ahead of time to see if he has printed info he can give me.

As for SE's, I tried Femara for 3 months to see if I had less joint stiffness. It seems that the neuropathy in hands and especially in feet was worse on Femara. I don't remember anyone else mentioning that. Now that I have been back on Arimidex for two months, I do think stiffness was a little better with Femara. I will ask my onc about switching back to Femara for three months to compare again.

03-30-2011, 07:24 PM	#8
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Re: Question about Continuing Arimidex past 5 years Hey all, As of my last appointment, my onc plans to leave me on indefinately. He told me from day one he expected more than five years. I have been on for 5 1/2 years now. I will see him on the 13th and ask what he is seeing in the research and what his opinion is. I will e-mail him ahead of time to see if he has printed info he can give me. As for SE's, I tried Femara for 3 months to see if I had less joint stiffness. It seems that the neuropathy in hands and especially in feet was worse on Femara. I don't remember anyone else mentioning that. Now that I have been back on Arimidex for two months, I do think stiffness was a little better with Femara. I will ask my onc about switching back to Femara for three months to compare again. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED! Last edited by sassy; 03-30-2011 at 07:28 PM..