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Re: Full of Beans - how are you these days??
Thank you all again, I have just read more post and realised how courageous you all are and that I mostly need to get my faith back and continue fighting, I having been a bit low for a while and I feel like I have been rolling with the punches a bit too long.. time to stand up again..
School teacher I know what you mean with "the stable" thing, for me either it is not good enough..I am also targetting NED and indeed thanks Steph for your encouragement about my research.
Also School T yes I was told by UW but only because (perhaps) they had given me a wrong dosage (lower) which saddened me a lot at the time but they still showed that I had a response tho this.
best to all
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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