HER2 Support Group Forums - View Single Post - FOR THOSE RUNNING OUT OF ALTERNATIVES-- high frequency focused ultrasound

michka · 02-06-2011, 01:02 AM

Lani, what you describe is exactly what I am going through. I am trying to get all the information myself and get the onc, the interventional radiologist and the surgeon to communicate and not only through me. The consensus seems to be for me a liver resection. They said "it's worth trying to go for a "curative" tentative. But this takes days and days!

Rich, the RFA guy is terrific.It's Joan who found him for me! He said "I can do it but I would go for surgery in your case even if it will be more difficult for you. But if you choose RFA, I have a 90% success rate in your case but don't wait because your mets are 20mm. The smaller they are, the better for success.".

I thank you Lani for all this information you give us. I am so grateful you do this for our group. I am now trying to process your posts saying that the liver is like a tomato, that liver resection is good for ER+ and that operations can generate bad immune system reactions.
If only new curative less invasive procedures could come out!
Michka

02-06-2011, 01:02 AM	#5
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: FOR THOSE RUNNING OUT OF ALTERNATIVES-- high frequency focused ultrasound Lani, what you describe is exactly what I am going through. I am trying to get all the information myself and get the onc, the interventional radiologist and the surgeon to communicate and not only through me. The consensus seems to be for me a liver resection. They said "it's worth trying to go for a "curative" tentative. But this takes days and days! Rich, the RFA guy is terrific.It's Joan who found him for me! He said "I can do it but I would go for surgery in your case even if it will be more difficult for you. But if you choose RFA, I have a 90% success rate in your case but don't wait because your mets are 20mm. The smaller they are, the better for success.". I thank you Lani for all this information you give us. I am so grateful you do this for our group. I am now trying to process your posts saying that the liver is like a tomato, that liver resection is good for ER+ and that operations can generate bad immune system reactions. If only new curative less invasive procedures could come out! Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms