Re: Need your Help/Advice - Got Dx with Brain Met
Awww Kris...as you know I am just heart sick with this new development....
I can't believe Kavy too has been diagnosed with Brain mets...sometimes I feel like we are all in the Twilight Zone.
I just spent the last 10 minutes searching for a fabulous thread that StephN posted in 2005 with pictures of her gamma knife. I couldn't find it. StephN, if you read this...did you not post pictures of your procedure? I thought it was incredible; I remember feeling riveted at the time...is it still on this board? Or did we lose it during the transition?
Also, during my search I reread StephN's comments about steroids...I have not taken them, but I seem to recall that they can have challenging side effects....of course you may not have to deal with this so forgive me for jumping the gun.
As you get more info from your doctor, remember to touch base with Brenda (Hutchibk) too as she has had much experience with brain mets. Stay with us. God speed this week.
Love Kim from CT
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
Last edited by mamacze; 01-22-2011 at 06:34 PM..
Reason: correction
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