HER2 Support Group Forums - View Single Post - Need your Help/Advice

krisvell · 01-22-2011, 02:28 PM

Thank you all for posting your words of encouragement and suggestions. To StephN; yes I had a brain MRI and they faxed me the report this afternoon. My oncologist is away this weekend so I'll have to wait til Monday. Based on the report, it is only one lesion -- 1.4 x 1.6 x 1.9cm involving the right cerebellar peduncle; base of the brain. I really don't understand everything but it looks like that's the only place and there's a lot of nos, unremarkables, normals describng other parts of the brain and tumor type, so maybe that's promising.

Your encouragement and successes gives me to strength to fight this one off too. I only wish that I had a longer time before recurrence but those are the cards that have been dealt to me. You have all been a true safety net; there's always someone who knows what to do.

THANK YOU ALL; keep 'em coming on advice. I really appreciate it.

Kris....

01-22-2011, 02:28 PM	#8
krisvell Senior Member Join Date: Sep 2009 Location: Kensington, CT Posts: 394	Re: Need your Help/Advice - Got Dx with Brain Met Thank you all for posting your words of encouragement and suggestions. To StephN; yes I had a brain MRI and they faxed me the report this afternoon. My oncologist is away this weekend so I'll have to wait til Monday. Based on the report, it is only one lesion -- 1.4 x 1.6 x 1.9cm involving the right cerebellar peduncle; base of the brain. I really don't understand everything but it looks like that's the only place and there's a lot of nos, unremarkables, normals describng other parts of the brain and tumor type, so maybe that's promising. Your encouragement and successes gives me to strength to fight this one off too. I only wish that I had a longer time before recurrence but those are the cards that have been dealt to me. You have all been a true safety net; there's always someone who knows what to do. THANK YOU ALL; keep 'em coming on advice. I really appreciate it. Kris.... __________________ 06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++ Nottingham 6/9 - Grade 2 5.2cm, several nodes 06/23/09 - Neoadjuvant - TCH Herceptin til June 10/07/09 - Finished Chemo 10/27/09 - Mastectomy RB Path Report: RB No residual tumor pCR, 2 of 15 pos - .5mm largest micromets 12/18/09 - Radiation started (28) 02/05/10 - Finished Radiation 01/11/10 - Started Femara 06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best. 11/15/10 - Started Walter Reed BC Vaccine trial at 1/04/11 - Sibley Mem. Had to withdraw due to met 01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm 02/03/11 - Gamma Knife (2 fracts to minmize necrosis) 03/01/11 - Gamma Knife 6/11 - Necrosis 7/11 - Necrosis stopped & Tumor progression 8/11 = Now think it's really necrosis 9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking. 12/11 - Necrosis gone AVASTIN worked. 12/11 - Bone &CT found Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!