HER2 Support Group Forums - View Single Post - From TriciaK: Suggestions or advice, anyone??

Joan M · 01-08-2011, 06:05 PM

Tricia,

Lucky you that you're neighbor is a radiation oncologist. He will be able to explain RFA to you. People who specialize specifically in RFA are interventional radiologists. They use CT scans to guide the probe. Your neighbor will know who you can speak with if you want to get additional information.

I believe in turning over as many rocks as possible. Although some of them might not be the right treatment it's worth checking them out.

Sending you good vibes and hoping you'll feel better soon.

Joan

01-08-2011, 06:05 PM	#17
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: From TriciaK: Suggestions or advice, anyone?? Tricia, Lucky you that you're neighbor is a radiation oncologist. He will be able to explain RFA to you. People who specialize specifically in RFA are interventional radiologists. They use CT scans to guide the probe. Your neighbor will know who you can speak with if you want to get additional information. I believe in turning over as many rocks as possible. Although some of them might not be the right treatment it's worth checking them out. Sending you good vibes and hoping you'll feel better soon. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!! Last edited by Joan M; 01-08-2011 at 06:09 PM..