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Old 01-06-2011, 12:49 PM   #9
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: From TriciaK: Suggestions or advice, anyone??

Tricia I'm sorry to hear the gemzar was not tolerated well for you. I really don't know as much as many of the ladies here re various drugs for mets, but have read recently of adding tykerb to herceptin but whether it may help your own situation I really don't know.
I think if you feel well enough to start sooner then I would if I were you, if nothing else I think it'll help you feel a little more empowered in doing something to beat this and perhaps less worried. I have no doubt you'll beat it as you have before and hope maybe Becky or one of the other members who understand this more will have some good advice for you.
I'll be keeping you in my thoughts and prayers for a good response to whatever you decide on
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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