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Joan M · 12-30-2010, 08:54 AM

Ellie, I've actually considered a vaccine trial and recently sent an e-mail to U Washington about their trials, but I haven't heard back yet. I might be eligible for one of them. I'm going to create a post asking some of the HER2 ladies about vaccine trials.

Rich, I'm a great believer in aspirin and never take ibuprofen unless there's a reason, like surgery, or something like that. I take calcium, fish oil and 2400 units of vitamin D daily. Several months ago I tested below level for D and my current onc put me on 50,000 iu once per week for 8 weeks and the level came back up. I'm going to ask to be tested again to ensure that the level is still okay.

Mary Jo, You are so right! I always tend to worry and think the grass is greener on the other side. Hallelujah for 2 years NED!!

Thanks.

Joan

12-30-2010, 08:54 AM	#13
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: Need your input about treatment Ellie, I've actually considered a vaccine trial and recently sent an e-mail to U Washington about their trials, but I haven't heard back yet. I might be eligible for one of them. I'm going to create a post asking some of the HER2 ladies about vaccine trials. Rich, I'm a great believer in aspirin and never take ibuprofen unless there's a reason, like surgery, or something like that. I take calcium, fish oil and 2400 units of vitamin D daily. Several months ago I tested below level for D and my current onc put me on 50,000 iu once per week for 8 weeks and the level came back up. I'm going to ask to be tested again to ensure that the level is still okay. Mary Jo, You are so right! I always tend to worry and think the grass is greener on the other side. Hallelujah for 2 years NED!! Thanks. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!