Re: Please post your two cents on Herceptin "side effects" real or perceived!
Hi, yes I had and have all of the side effects that the other women were talking about. It was so interesting to read their stories as I thought I had these problems because I was on Herceptin for 5 years but alot of them were only on it for 1 year or less. My worst probllem is fatigue which no matter how long I sleep or even taking Ginsing{my onc told me to try it as they didi a study of chemo fatigue and this helped} but it really doesn't help. Also, I have neuropathy in both hands and feet. Then of course I have a great case of "chemo fog". I am happy to be alive and cancer free and I can and do deal with my side effects. Hope you are doing well and Herceptin is a wonderful drug and has saved many lives. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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