|
Re: More Brain Mets - New Plan Thoughts?
Thanks for checking in on me gals - you make me feel so not alone in this journey. I see that I neglected to post my additional good news. My onc took my CA 15-3 tumor markers at my last appointment (3 weeks ago) and they had come down 20% since the previous appointment 3 weeks prior to that. A 20% drop in 3 weeks without being on chemo! I take that as a very good sign that something is working. I'll go in again tomorrow and will have markers drawn again. I hope the drop keeps on dropping! We'll scan the body in 2 weeks up in Seattle and then scan the brain right after the holidays to make sure everything is on the up and up.
Sarah - I am sorry to hear about your friend. My advice would be for her to consider a chemo that crosses the blood brain barrier such as Xeloda or Temodar. Of course a second opinion is always a good idea.
Steph - Hope to see you when I'm in Seattle. I'll be there for scans and a booster vaccine shot on Nov. 16th. Got time for lunch? Would be lovely to see you again.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|