HER2 Support Group Forums - View Single Post - Cold Cap Therapy Halts Hair Loss During Chemo?

Lori R · 10-28-2010, 09:34 PM

Karen,
Unfortunately, I heard about the cold cap after completing my first complete cycle of chemo. When I was about to enter my 2nd round I asked my Onc (who only goes for the tried and tested)about the cap. Since I had mets, she indicated that it left me at risk and discouraged it. I was very disappointed.

I even e-mailed the maker of the cap who was very anxious to have someone in the US help facilitate some trials. I applaud the women that started the Rapunzel foundation to determine if this method enables women to keep their hair while not increasing their risk of recurrance.

But....it would appear that per the article I fall into the category of having a blood borne cancer. (right??? because the tumor cells are now circulating in my blood???)

It would be great if you could use this and keep your hair!!!!

10-28-2010, 09:34 PM	#4
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Cold Cap Therapy Halts Hair Loss During Chemo? Karen, Unfortunately, I heard about the cold cap after completing my first complete cycle of chemo. When I was about to enter my 2nd round I asked my Onc (who only goes for the tried and tested)about the cap. Since I had mets, she indicated that it left me at risk and discouraged it. I was very disappointed. I even e-mailed the maker of the cap who was very anxious to have someone in the US help facilitate some trials. I applaud the women that started the Rapunzel foundation to determine if this method enables women to keep their hair while not increasing their risk of recurrance. But....it would appear that per the article I fall into the category of having a blood borne cancer. (right??? because the tumor cells are now circulating in my blood???) It would be great if you could use this and keep your hair!!!! __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)