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Old 10-12-2010, 10:06 AM   #67
ElaineM
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Join Date: May 2006
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Wink Re: What can we do about the delay of TDM-1

Thanks for reviving this subject. I was wondering what if anything we have decided to do about it. If I remember correctly some people were willing to be interviewed. Some people were going to write letters.
Somebody was going to ask Christine for her opinion.
I said I would sign a petition and offered to do research. I included several links to important information during our discussions. I thought October would be perfect timing, because it is breast cancer awareness month.
It seems the subject has been dropped. I don't know why. I wish I knew. Maybe we all got too busy, but this subject is an important one for every one of us, even those of us who are NED, because unfortunately cancer can return at any time, even years later.
I heard expanded access will end October 31st. However, some of the T DM1 clinical trials will continue.
If interested people go to clinicaltrials.gov and do a search for T DM1 they will find available trials. I guess that is the only option until the FDA fully approves T DM1.
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ElaineM
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