[Jane]

Pam,
I hope the new diagnosis is helpful and can bring you to a better place. You sound as though you have really been struggling.

I have an autoimmune disease called vasculitis and I took high dosages of steroids when I had my first diagnosis. I was incredibly ill and the steroids saved my life, I'm pretty sure. They worked quickly and were most effective. I also have been on Immuran (another form of Methtraxate) for two years now and have had no problems with it. I have not had another flare of the vasculitis.
So perhaps a similar treatment for you will bring good results also.

My main doctor now, besides my oncologist, is my rheumatologist. She is an expert in my type of vasculitis and I am so thankful she is based in Pittsburgh. I think/hope you will find your rheumatologist to be quite knowledgeable on such an immune problem.

Please continue to let us know how you are faring - I'm thinking and praying for you.

Jane