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Old 09-23-2010, 03:29 PM   #1
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Update on My Sister

Dear Friends

I figured I would update on my sister today. She had her lumpectomy and they also took 6 nodes (before even testing if it was only dcis as the biopsy said - they told her today they did this because the first one looked suspicious). But she only had dcis (6.7mm). She found out today that it is high grade, ER+ 99%, PR+ 70%. They do not run Her2 on dcis apparently, it isn't routine. She is having blood drawn for BRCA testing (my cousin and I were negative and I am thinking my sister will be as well but you never know). If positive, she will have a bilateral. If negative, she will have radiation. She is holding up very well, working etc. The lumpectomy and node dissection was September 2. I am worried though since high grade dcis is not a good thing but it is better than high grade invasive cancer.

It will be interesting to see her BRCA result. If she is positive, I am going to get Muriad to relook at that section of my dna. Mistakes are made which would be a shame as it would have "saved" my sister since when I got tested, she said if I was positive, she would test. And if she was positive, she was going to do all the prophylactic surgeries straight away.

Hope you are all having a lovely day.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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