HER2 Support Group Forums - View Single Post - Giving Up Hope

Debbie L. · 09-21-2010, 08:43 AM

NBCC has launched a bold initiative. I am eager to hear more about the steps we can take to make this happen, but the first step is to get the word out. This link is to one page, but if you use the tabs above the main window, you can get more information, including a well-written whitepaper with more information. In the "hear what the experts say" page, Denny Slamon is featured, along with Susan Love and Kim Lyerly. Be sure to go to the voting page "choose a side" and cast your vote. As one of the first comments says "why would anyone vote no?".

http://www.stopbreastcancer.org/2020...-deadline.html

Debbie Laxague
(PS: if your JW player (whatever that is) is not up to date, you might have trouble viewing the videos. Click on the JW player icon that pops up in the bottom left of the video window and you can update it quickly and easily)

09-21-2010, 08:43 AM	#1
Debbie L. Senior Member Join Date: Jul 2006 Posts: 463	Giving Up Hope - are you with us? NBCC has launched a bold initiative. I am eager to hear more about the steps we can take to make this happen, but the first step is to get the word out. This link is to one page, but if you use the tabs above the main window, you can get more information, including a well-written whitepaper with more information. In the "hear what the experts say" page, Denny Slamon is featured, along with Susan Love and Kim Lyerly. Be sure to go to the voting page "choose a side" and cast your vote. As one of the first comments says "why would anyone vote no?". http://www.stopbreastcancer.org/2020...-deadline.html Debbie Laxague (PS: if your JW player (whatever that is) is not up to date, you might have trouble viewing the videos. Click on the JW player icon that pops up in the bottom left of the video window and you can update it quickly and easily) __________________ 3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband. 4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA ERPR 5%/1% (re-done later at Baylor, both negative at zero). HER2neu positive by IHC and FISH (8.89). Lymphovascular invasion, grade 3, 8/9 modified SBR. TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion. 2017: Mild and manageable lymphedema and some cognitive issues.