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Chelee · 09-03-2010, 05:43 PM

Pam,
You have certainly dealt with more then your fair share of side affects..my heart goes out to you. I'm so sorry to hear your now dealing with swelling in your arms. Like you didn't have enough to deal with. I sure hope this CT rules out a blood clot...yet gives them a clue as to what might be going on? I can only imagine the anxiety this is causing you.

You had mentioned having acupuncture. I remember reading that it hurt and it's really not suppose to from what I've been told. (But I'm no expert in that area.) But do you think the person doing your acupuncture could be possible putting the needles in too deep therefore causing swelling? (Just a thought?) I don't remember if you said you were having the needles placed in your arms? Maybe you should temporarly stop that until they figure out what's going on? Please keep us updated...I'll be keeping good thoughts for you.

Chelee

09-03-2010, 05:43 PM	#20
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: PET/CT results good! next step? Pam, You have certainly dealt with more then your fair share of side affects..my heart goes out to you. I'm so sorry to hear your now dealing with swelling in your arms. Like you didn't have enough to deal with. I sure hope this CT rules out a blood clot...yet gives them a clue as to what might be going on? I can only imagine the anxiety this is causing you. You had mentioned having acupuncture. I remember reading that it hurt and it's really not suppose to from what I've been told. (But I'm no expert in that area.) But do you think the person doing your acupuncture could be possible putting the needles in too deep therefore causing swelling? (Just a thought?) I don't remember if you said you were having the needles placed in your arms? Maybe you should temporarly stop that until they figure out what's going on? Please keep us updated...I'll be keeping good thoughts for you. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.