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Old 09-02-2010, 02:41 PM   #17
Nancy L
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Join Date: Apr 2009
Location: La Quinta, Ca
Posts: 253
Re: PET/CT results good! next step?

After I had a serious allergic reaction to 1000mg of Tykerb after only five days of treatment, Dr. Slamon dropped me to 750mg which I have now been on for 19 months. I also get Herceptin every three weeks. All of our bodies are different----one size fits all does not apply to drugs. My husband is so drug sensitive that he always starts on a very low dose and adds as needed to get the result the doctor is looking for. Cancer drugs are different but I still say "one size does not fit all"---it is just easier for the docs and the drug companies. In the ideal world, they would be working with each of us to find the exact optimum dosage level. I take my Tykerb at bedtime---that way I know it won't interfere with food. But I do think it makes me restless and sometimes I have to take 5mg of Valium to get to sleep.
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