HER2 Support Group Forums - View Single Post - update

Darlene Denise · 08-22-2010, 04:25 PM

Pam: I just had a bad scan on Navelbine/Herceptin and have started the paperwork for TDM1. My onc wanted to do Abraxane/Herceptin or re-visit Taxol/Carbo/Herceptin. If I qualify for the trial I want to pursue it. Right now my MUGA and liver enzymes qualify. That could change and I would not be eligible for the EAP TDM1. So, I want to get it while I can. I will have to travel from Va Beach to Nashville.

I noticed on a previous post that Carolyn mentioned expense in the $15k range and that you indicated that would not be possible for you. I was wondering if you have life insurance that you could obtain Accelerated Benefits on to help fund your treament travel expenses. If you do and need some info, I'll be glad to help you along. I have a life insurance background. I have done so with all three of my policies over 2 years ago and have kept the money available for reasons just like this.

Just wanted to pass this along and let you know there is another sister out there thinking of you and sending her best.

Stay strong....Darlene

08-22-2010, 04:25 PM	#20
Darlene Denise Senior Member Join Date: Aug 2008 Location: Virginia Beach, Virginia Posts: 145	Re: update - what to do? Pam: I just had a bad scan on Navelbine/Herceptin and have started the paperwork for TDM1. My onc wanted to do Abraxane/Herceptin or re-visit Taxol/Carbo/Herceptin. If I qualify for the trial I want to pursue it. Right now my MUGA and liver enzymes qualify. That could change and I would not be eligible for the EAP TDM1. So, I want to get it while I can. I will have to travel from Va Beach to Nashville. I noticed on a previous post that Carolyn mentioned expense in the $15k range and that you indicated that would not be possible for you. I was wondering if you have life insurance that you could obtain Accelerated Benefits on to help fund your treament travel expenses. If you do and need some info, I'll be glad to help you along. I have a life insurance background. I have done so with all three of my policies over 2 years ago and have kept the money available for reasons just like this. Just wanted to pass this along and let you know there is another sister out there thinking of you and sending her best. Stay strong....Darlene __________________ 12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY 01/14/08 2 AC TREATMENTS-NOT WORKING 02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS! 05/12/08 HERCEPTIN EVERY 3 WKS 08/22/08 BRAIN METS! 8 <5MM 09/17/08 CYBERKNIFED BRAIN METS 10/20/08 BRAIN METS SHRINKING 12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT 01/16/09 LIVER REOCUR-XELODA/HERCEPTIN 03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ? 3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN 06/08/09 STUPID BRAIN HAS 3 LESIONS 06/29/09 CYBERKNIFE 07/01/09 LIVER REGRESSION NO NEW METS 07/07/09 TYKERB XELODA HERCEPTIN 11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION 03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!! 03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE 05/21/10 NAVELBINE/HERCEPTIN WORKING! 07/19/10 GOOD BRAIN MRI 08/20/10 LIVER PROGRESSION 09/08/10 TDM1 - NASHVILLE TN 01/10/11 LIVER RESPONDING TO TDM1