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Re: update - what to do?
Pam, I'm so sorry to hear your current trt wasn't working...darn it! I sure hope all your side affects clear up quickly. Those mouth sores are the worse...you poor thing...my heart really goes out to you.
It's so hard to make these kinds of decisions on "what next"? But once you get the results back from your scans I have a feeling you will know what to do at that time. I have to agree with Chrisy about the T-DM1. It's really done great in women that have been thru multiple therapies when all else has failed. As far as T-DM1 the distance alone would be very hard on you. I was having a difficult time just thinking about going two hrs each way--that is nothing compared to what your dealing with. I will keep you in my thoughts and prayers...and part of that prayer will be for a "new" site with T-DM1 will pop up some where close to you soon. Let us know how things go. Hang in there...I know it's not easy. Sending you positive thoughts and a really BIG hug!
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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