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Re: update - what to do?
Pam, I could be thinking of someone else but I think Carolyn traveled a long distance - so had flights as well. I doubt the financial impact would be as severe for you, bit would not be free (unless you could get help from insurance on this).
Still, even 280 miles is a long long way to go, and as you say would involve overnight travel (at least until a site closer to you opened up).
Much as I am a proponent of TDM1, it sounds like it could be very draining - part of your decision might be "am I up to it" vs. getting the abraxane locally first. Your onc is right, which one would work better is just a guess; but remember one of the more remarkable things in the early TDM1 studies was the number of prior therapies. And it works so differently that I remain hopeful it would perform better than expected.
You will make the right choice for you, just listen to your heart. In the meantime, mashed potatoes and popsicles will help.
Hugs,
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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