HER2 Support Group Forums - View Single Post - update

Lori R · 08-19-2010, 05:13 PM

Pam,
So sorry that you are back into decision mode. It does sound as if your approach is well thought out, so when more data is available you will make the decision that you are comfortable with.

I just wanted to provide you reassurance if you decide Abraxane is the next step.

I was on it last year via weekly cycles. It was VERY tolerable. Due to the Alubium coating, it is better targeted to tumor cells. If your system needs a break, this would seem like a good option.

Really....no mouth sores, minimal hair loss, no neuropathy.

Keep us posted and we'll be our sounding board for confirming you decision.

08-19-2010, 05:13 PM	#4
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: update - what to do? Pam, So sorry that you are back into decision mode. It does sound as if your approach is well thought out, so when more data is available you will make the decision that you are comfortable with. I just wanted to provide you reassurance if you decide Abraxane is the next step. I was on it last year via weekly cycles. It was VERY tolerable. Due to the Alubium coating, it is better targeted to tumor cells. If your system needs a break, this would seem like a good option. Really....no mouth sores, minimal hair loss, no neuropathy. Keep us posted and we'll be our sounding board for confirming you decision. __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)