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Old 08-13-2010, 08:59 PM   #40
flynny
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Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
Re: Pet Scan for Stage 1?

This thread gives me such mixed emotions. As I, too, feel I'm an individual but I don't necessarily feel like I'm being treated as one. I think I've asked this question so many times to my onc that she must be sick of me asking the questions. The doctors at DFCI say that unless you are "symptomatic" then that's when they will do scans. I don't get it. Why can't they just give us that peace of mind?? I know too much with what my mother went through and all I want is a brain MRI and maybe the pet/ct. My mother wax dx in 2004 and in Oct. 2006 it went to her brain (but it wasn't seen on the image until March 2007). She had MS and the ONLY reason she had a brain/spine MRI is because they wanted to compare her lesions from previously, however they never sent them to her MS doctor in October and our MS appt wasn't until March 26, 2007. If the hospital where she had the scans done in October read them correctly, she may be here today! My point is I know Her2+++ is more aggressive so why not just give us what we need? Has anyone gone to MD Anderson who is Stage I and what do they say??
__________________
-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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