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Barbara H. · 08-04-2010, 05:37 AM

HI Pam,
I do not have any suggestions, but I hope that the T-DM1 trial will work for you at some point. Irene was taken off the trial because of one of her liver tests. If this drug had been approved she could have gone back on it. It had been working for her when she was forced to discontinue it.

I was on this drug for two years and it was still working when I had to go off the trial due to the side effect of lung inflammation. As far as I know, I am the only one who has had that effect. Nevertheless, I could still use it again with caution when it becomes available.

Best wishes,
Barbara

08-04-2010, 05:37 AM	#16
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Re: Trying not to panic HI Pam, I do not have any suggestions, but I hope that the T-DM1 trial will work for you at some point. Irene was taken off the trial because of one of her liver tests. If this drug had been approved she could have gone back on it. It had been working for her when she was forced to discontinue it. I was on this drug for two years and it was still working when I had to go off the trial due to the side effect of lung inflammation. As far as I know, I am the only one who has had that effect. Nevertheless, I could still use it again with caution when it becomes available. Best wishes, Barbara