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Old 08-04-2010, 04:57 AM   #14
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Re: Trying not to panic

Thank you to everyone for your kindness and support. It means so much.

Thanks Elaine & Steph for contact info on t-dm1 access. I will start calling this week to see if it's possible to arrange a screening. Then I can take any info I get to my onc. on 8-19.

It sounds like t-dm1 would be my most optimistice choice. But in case I can't do that now for whatever reason, what do you think would be my next best treatment options now?

Brenda you mentioned just switching aromosin to tamox. or something similar - a small shift in meds. My onc. might agree since my July scan was stable. I'll ask about that.

I have not had abraxane, doxil, ixempra. Are there other options I haven't had that I'm not aware of?

If I can find a treatment that can hold me at least until early 2011 ---- then hopefully as I read somewhere on this board - t-dm1 might be available to all.

Carolyn - please let me know how the ixempra goes for you today.

Chelee - that was Irene from Tampa who did so well on t-dm1 until she was eliminated from the trial for liver enzymes issues. Our hearts all broke for her when she was denied to continue that. I know with the liver issues she no longer fit the criteria of the trial so they eliminated her from the study. But I was never clear though - was the liver issue a sign that the t dm1 wasn't working for her at that point anyway or was that something that if it wasn't a clinical trial situation she would have just had to manage and continue.... and might be with us today?

Thank you all for your great wisdom and encouragemnt. Pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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