HER2 Support Group Forums - View Single Post

Jackie07 · 08-01-2010, 05:35 PM

Jenny,

From what I've been reading on the Board so far, an effective treatment ('so far it is working') usually is not replaced until it quits working (scan showing progression).

If you use the 'Search' button and look up the 'long-time' or 'long-term' survivor threads, you'll find (from the signatures - treatment history) members who have successfully treated their bone mets and/or have been in good maintenance.

To input your treatment history, click on the 'User CP' button and input it in the 'Signature'. It will automatically appear everytime you post a new message.

Your doctor may be using the 'cutting edge' method since you are newly diagnosed. Read the updated information on the Home page and the additional links it provides. You may find some good information there (such as 'clinical trials', 'National Health Institute database - PubMed'...etc)

Welcome to the Board and please keep us posted and let us know how you are doing/feeling/... etc.

08-01-2010, 05:35 PM	#4
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: new here suggestions welcome Jenny, From what I've been reading on the Board so far, an effective treatment ('so far it is working') usually is not replaced until it quits working (scan showing progression). If you use the 'Search' button and look up the 'long-time' or 'long-term' survivor threads, you'll find (from the signatures - treatment history) members who have successfully treated their bone mets and/or have been in good maintenance. To input your treatment history, click on the 'User CP' button and input it in the 'Signature'. It will automatically appear everytime you post a new message. Your doctor may be using the 'cutting edge' method since you are newly diagnosed. Read the updated information on the Home page and the additional links it provides. You may find some good information there (such as 'clinical trials', 'National Health Institute database - PubMed'...etc) Welcome to the Board and please keep us posted and let us know how you are doing/feeling/... etc. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 08-03-2010 at 01:43 PM..