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Lori R · 07-22-2010, 05:11 AM

Dear Laurie,
So sorry the current belief is that the mass is BC.

You are doing all of the right things and as you well know, the worst part is over. Deciding what/when/how to inform our children is sooo difficult. Your instincts sound right on target in terms of being honest yet cautious.

I am so glad you found this site as it is an amazing resource for emotional support and hands on advice from many who have gone before you.

When you get the final test results and a possible game plan, please come back for input. While this might be overwhelming right now, it would be a good idea to ask your Dr. about the availability of a TDM-1 trial. IF...I repeat IF the biopsy returns bad news, you would be in a good position as a first time metastatic patient. There are trials available to you that aren't available to some of us that have been on a couple of different chemo treatments.

I have a trial in mind but need to jump of the site to get the specfics. Not certain where it is being offered and with 3 children, I appreciate the need to keep things stable on the home front.

I'll stop for now ....sending you continued prayers that the biopsy confirms B-9!!!

07-22-2010, 05:11 AM	#16
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Mass in liver Dear Laurie, So sorry the current belief is that the mass is BC. You are doing all of the right things and as you well know, the worst part is over. Deciding what/when/how to inform our children is sooo difficult. Your instincts sound right on target in terms of being honest yet cautious. I am so glad you found this site as it is an amazing resource for emotional support and hands on advice from many who have gone before you. When you get the final test results and a possible game plan, please come back for input. While this might be overwhelming right now, it would be a good idea to ask your Dr. about the availability of a TDM-1 trial. IF...I repeat IF the biopsy returns bad news, you would be in a good position as a first time metastatic patient. There are trials available to you that aren't available to some of us that have been on a couple of different chemo treatments. I have a trial in mind but need to jump of the site to get the specfics. Not certain where it is being offered and with 3 children, I appreciate the need to keep things stable on the home front. I'll stop for now ....sending you continued prayers that the biopsy confirms B-9!!! __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)