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Old 07-14-2010, 02:09 PM   #33
swimangel72
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Join Date: Apr 2008
Location: NY
Posts: 240
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

Thank you all for your comments - I find this thread very interesting, especially since after two and a half years on Arimidex the SEs have forced me to ask my onc to let me stop. He said I could have a "vacation" - but he's ordering a PET scan for me (my first one) which will help him decide how to move forward. Today is my second day without Arimidex - and although my bones still hurt, I do feel more energetic and less hungy, yay! I'm hoping my PET scan is totally clear so I can convince my onc to let me have a permanent vacation from Arimidex. For me, the SEs have been cumulative - the first 6 months to a year I didn't notice much of anything - but after 18 months, I really started experiencing problems (achy joints - bad hip - muscle weakness - lack of energy - total lack of libido) I was one who sailed through menopause (early - age 50) - so all these new SEs make me feel as old as my 85 year old mother! I told my onc there's no way I can continue like this for another 2.5 years - he's a sensitive person and good communicator, so I appreciate this vacation.

Edited to add: Hi Jean - we posted at the same time! I agree that swimming really is helpful - but these days, I told my onc it's not helping me anymore. My muscles and joints hurt in the pool and after I swim - nowadays I have a new pain in my chest close to my collar bone. I'm hoping it's due to Arimidex affecting an area I use alot in the pool. I have been trying to increase my speed and distance, but still poop-out after half-a-mile - in my old pre-BC days, I could swim a mile in 42 minutes, now I can only do half that.
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xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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