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Re: Treatment Decision Time
Hi Courtney,
Sorry to hear that you have another hurdle to overcome. I don't have much to offer in terms of my opinion on what to do, but please know that I'm praying for you and your doctors to come up with an effective treatment plan.
I also wanted to ask you if you have considered going to UCLA to Dr. Slamon's team for a consultation. I say this because last weekend I participated in the CDMRP peer review panel for the DoD and had the privilege of being in the same panel as Dr. Hurvirtz who works with Dr. Slamon. She was very positive and told me that UCLA has lots of trials going on. Let me know if you're interested - I can PM you her contact info.
Good luck!
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ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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