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Joan M · 05-22-2010, 05:44 PM

Jessica,

I'm very sorry to hear about your brain met. I've been down that road with a brain met that was almost 3 cm. It was also in the left frontal lobe.

Since the met was too big for stereotactic radiosurgery alone (one dose of radiation), I had brain surgery in October 2008 followed by five doses of stereotactic radiotherapy in December 2008. So far it's been fine. Two weeks ago, I had another follow-up brain MRI and the area treated looks good. Also, there are no new mets.

I'm sending prayers and good vibes your way.

Joan

05-22-2010, 05:44 PM	#7
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: Now Novalis for brain met too:( Jessica, I'm very sorry to hear about your brain met. I've been down that road with a brain met that was almost 3 cm. It was also in the left frontal lobe. Since the met was too big for stereotactic radiosurgery alone (one dose of radiation), I had brain surgery in October 2008 followed by five doses of stereotactic radiotherapy in December 2008. So far it's been fine. Two weeks ago, I had another follow-up brain MRI and the area treated looks good. Also, there are no new mets. I'm sending prayers and good vibes your way. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!! Last edited by Joan M; 05-22-2010 at 05:50 PM..