Thread: Sheila
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Old 05-13-2010, 06:32 AM   #4
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Sheila

Thanks Rina for asking...I do check in here every day but havent posted in a while...my Mom has consumed alot of my time, she was taken off the chemo as she was so sick. She just got 2 units of blood, which brought her up to a 9.3....not so good. She is now on an ant-depressant, aka Happy Pilll so she isnt crying al the time...we are trying to keep her in good spirits and somewhat positive in the scope of things as long as we can.

I know she is worried about me...I have had 4 echos in the past 2 months...I have become so short of breath and tired ...the pericardial effusion seems to be one main culprit, and the last echo showed over a quart of fluid around my heart and increasing....alot of back and forth between my NEW oncologist and the cardiologist as to the cause and solution....I dont feel i am getting anywhere with the Avastin, she keeps saying it is very synergistic with Herceptin....big deal if it isnt working for me. So now a new CT and another echo and then plans to drain the fluid, which requires a thoracic surgeon and a stint in the hospital....also talk of possibly trying to remove? some of the nodes wrapped around the pulmonary artery.

I have never slept this much in my life ...need to start checking my self for bedsores! My husband is worried as i dont have any interest in shopping anymore...must be why the economy is doing bad!
Seems my life revolves around Dr appts at this point.
Maybe a lunch at the Cheesecake Factory is in order...after you recover from shoulder surgery!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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