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Old 05-07-2010, 08:52 PM   #20
vlcarr
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Join Date: Jun 2009
Posts: 343
Re: What now - lower back, hip & shoulder pain

My tests turned out normal and also showed my pneumonia was almost gone!!!! Yeah.

The sad part is the nurse and my onc said they would call me and not make me wait over the weekend to find out the results. My husband and I even ran into my onc at the hospital in the hallway right after my scans.

I told her that last night my fever went up a little and I just ached and hurt so bad I could not rest. She said she was going to the hospital for a consult and she would stop by radiology after that. I then said, And you will call me, and she said yes.

Well, at 9:00 pm tonight I called the 24 hour emergency number and the onc on call found my results and gave them to me over the phone.

I really, really like my onc and know she is very competent but this time she screwed up.

Now I'm trying to think of the best way to give that feedback to her. I can e-mail her through the hospital web site......I don't want to scream and yell (that's not like me anyway). I need to think about this. My friend's father is a surgeon so I may call him and get his advice from a doctor's standpoint. The funny thing is my friend said her Dad always gives his patients his home phone number, cell phone, etc. I don't think I've ever had a doctor do that!

My pain tonight has not been as bad. Last night my fever went up again (99.5) and I just ached and hurt so bad that I could not rest.

Can you have withdrawals from herceptin? I missed my dose due to the pneumonia so just wondered if that is even something that could explain my pain?

At least I can relax and have a good weekend now.

Thank you all for your encouragement. Don't know what I would do without you all.

Happy Mothers Day everyone
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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