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Re: What does this site mean to you?
I was all set to receive Whole Brain Radiation for brain mets last spring when I posted on this website and was given some incredible advice about the advantages of doing targeted radiation, such as Gamma Knife, and saving WBR for down the road should I ever need it.
As it turned out, Gamma Knife was all I needed to get me to NED in the head. I was spared the potentially horrible side effects associated with WBR.
I can not thank the ladies and gentlemen on this website enough for the invaluable advice and encouragement that they gave to me in my time of need.
I've also received so many good suggestions for tips on diet, nutrition, supplements, etc. I credit much of my health successes today to the information I received on this site.
Plus, knowing I am not alone as I wage war on this beast has made all the difference in the world. There is strength in numbers and together we can beat this beast.
Thank you, Christine and Joe.
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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