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Chelee · 03-28-2010, 04:42 PM

Thanks for all the support and feedback...I read all your posts and appreciate each one of them. My lungs are much improved...but I still have oxygen here at home. But I am able to go to my appts now without carrying a tank with me. I'm not sure at this point if the Neupogen or chemo that caused it...or a an infection in my lungs? Several of our chemo nurses are awful sick...congestion in their sinues and lungs. (Makes me wonder?) But on another note we stopped my Neupogen and lowered my dose of Navelbine this last time and so far no problems other then slight tightness in my chest? So I don't know which one caused the problem? I really wish I knew which one was responsible because that is a very tolerable chemo combo I would like to keep using if need be.

I am currently going to a different cancer center for radiation to my right femur. I am to do ten days of rads & Monday will be day five. So far it's not been too bad except feeling tired. I had no pain in the hip once I recovered from my femur surgery. The leg finally felt great! I was walking without my cane and feeling pretty darned good. But now after only 4 days of rads to my femur I've noticed my hip and one place of my pelvis hurts. Also the arch of my foot is killing me when I walk. I don't know if all this is normal but I will be discussing this with the Rads Onc tomorrow before we start again. I was told radiation gets rid of pain...not causes it?

I did have a CT of chest, abdomen and pelvis along with a bone scan. Results of both were good. (Thank goodness.) Nothing new showed up. I was relieved to say the least. My onc wants to stop my Navelbine and save it since scans are stable...but another 2nd opinion breast specialist I went too said he would keep me on this combo for another 2 months. The City of Hope onc told me she would keep me on this for four months...so I guess it's up to me to decide. I'm kind of scared to be on only Herceptin at this point...not sure what do to?

Chelee

03-28-2010, 04:42 PM	#34
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Chelee???? Thanks for all the support and feedback...I read all your posts and appreciate each one of them. My lungs are much improved...but I still have oxygen here at home. But I am able to go to my appts now without carrying a tank with me. I'm not sure at this point if the Neupogen or chemo that caused it...or a an infection in my lungs? Several of our chemo nurses are awful sick...congestion in their sinues and lungs. (Makes me wonder?) But on another note we stopped my Neupogen and lowered my dose of Navelbine this last time and so far no problems other then slight tightness in my chest? So I don't know which one caused the problem? I really wish I knew which one was responsible because that is a very tolerable chemo combo I would like to keep using if need be. I am currently going to a different cancer center for radiation to my right femur. I am to do ten days of rads & Monday will be day five. So far it's not been too bad except feeling tired. I had no pain in the hip once I recovered from my femur surgery. The leg finally felt great! I was walking without my cane and feeling pretty darned good. But now after only 4 days of rads to my femur I've noticed my hip and one place of my pelvis hurts. Also the arch of my foot is killing me when I walk. I don't know if all this is normal but I will be discussing this with the Rads Onc tomorrow before we start again. I was told radiation gets rid of pain...not causes it? I did have a CT of chest, abdomen and pelvis along with a bone scan. Results of both were good. (Thank goodness.) Nothing new showed up. I was relieved to say the least. My onc wants to stop my Navelbine and save it since scans are stable...but another 2nd opinion breast specialist I went too said he would keep me on this combo for another 2 months. The City of Hope onc told me she would keep me on this for four months...so I guess it's up to me to decide. I'm kind of scared to be on only Herceptin at this point...not sure what do to? Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.