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Re: Scanxiety Confirmed, Progression Shown
Shelia, Things started out so good for you on this combo...I can only imagine how your feeling about now. But gosh darn it all...I'm so sorry you have to deal with this. I will be praying that this leads you into a better direction. Weren't you on a wait list for TDM1? I hope that is a real possiblity...or as Steph mentioned, seeing if you could get on Neratinib trial. I feel so bad for you...it's been one fight after another for you. It seriously makes me angry that you have to deal with this. But I will continue to keep you in my thoughts and prayers that something will work it's magic. Sending you lots of positive energy and love your way.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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